We’re here to help
The CJD Support Network is the only UK charity providing emotional and practical support for all forms of CJD & prion disease and for those who are at greater risk.
How can we help?
We can provide information on the different forms of prion disease, guidance, and support by telephone and email, and connect you with others who have similar experiences.
A Friendly Voice
Call us on: 0800 774 7317
Our helpline is open from 8am-6pm on Tuesday & Friday. Messages left outside of these hours will be responded to as soon as possible.
Join In
Stay connected with us and remain up to date with our work by joining our mailing list here.
Fundraise
We are totally dependent on fundraising and donations to continue our work. To get involved visit our fundraising and donation pages.
1 in 5,000
Is the lifetime risk of CJD
3 Types
CJD can be sporadic, genetic or acquired
20+ Years
We’ve offered support
