3 half marathons in 3 months for Rob!

Claire Swain has set up a fundraising campaign in loving memory of a wonderful Dad, Grandad, Husband, Brother, Uncle –

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Service closure – 23rd August (full day)

Our helpline and email service will be closed on Friday 23rd August. Please do continue to contact us and we

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Research news: Ionis community update statement

We are please to share the following community update statement that has been released by Ionis Pharmaceuticals about their ongoing

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Three months to go! International CJD Awareness Day

This year, as every year, the CJD Support Network will be marking International CJD Awareness Day on 12th November. Below

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Newly added ‘Real Story’ – Paula Dyson

We are deeply moved to share a personal story recently contributed by Anthony Dyson, whose mum Paula passed away with

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2024 Family Support Meeting – Registration now closed

With just 6 weeks to go, registration for our 2024 Family Support Meeting (6th and 7th September) is now closed.

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