A photo taken in a pub. A young woman, Jodie, leans her head against the shoulder of a man with a white beard. This is her father, Taff. They look totally comfortable together.

100 Miles in May for Taff – A Daughter’s Tribute

Jodie has let us know that she is undertaking a step challenge in memory of her beloved Dad, Stafford, known

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Image shows a microscope and gloved hands of a scientist with the title 'End of an Era for CJD Surveillance, Research and Support in the UK'

End of an Era for CJD Surveillance, Research and Support in the UK

The National Diagnostic Advisory Service (NCJDAS) in the University of Edinburgh will cease operating on 31/3/26. From 1980 to 1984,

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A group of people are standing together in a historical pub with ceiling timbers showing. They are wearing bright yellow 'CJD Support Network' t shirts and look happy. All ages are represented.

Cogs’s Clever Quizzes for Darlene Well Underway for 2026, plus an Invitation

2026 has started on track for Cogs’s Clever Quizzes in South Wales.  Ian says: A cold and damp Sunday on

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Three photos. The first shows a group of adults and children on a bright sunny day by a lake, Everyone looks happy to be there. Next, two women embrace whilst taking a selfie in a mirror. One is blond and one is brunette. They are leaning towards each other with big smiles. Finally, two teenagers, the same two women but at a younger age, laugh into the camera. One is covering her mouth whilst laughing. They look delighted to be together.

Brighton Marathon for Louise

We are delighted to share the first of what we will be many updates about fundraising activities in 2026.  Macey

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A christmas card with a navy background. It says 'Thinking of you at Christmas' and shows a Christmas Tree shape made out of sparkles. There are delicate baubles hanging from the top of the card. One of them is the CJD Support Network logo. At the base of the card it says 'Supporting the CJD Support Network'.

Christmas and New Year Support Network E-Cards and Festive Season Opening Hours

The CJD Support Network sends you and yours all best wishes for this festive season, and for the year ahead.

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A yellow flower background. The text reads 12th November is International CJD Awareness Day.

International CJD Awareness Day 2025

We are proud to stand with international CJD and prion disease support organisations today, 12th November, International CJD Awareness Day.

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