Will & Danny’s London Marathon Fundraising Event!

Will and Danny are both running the London Marathon this year and will split their fundraising between the CJD Support

Reflections on 7 years of Committee Membership

We are sad to announce that Annette Beal (pictured with beloved husband, Mick), who has been a member of the

This April, Jimmy Jarvis is taking on Manchester Marathon to raise funds and awareness for CJD, Jimmy says: “I am

This year on Rare Disease Day (29th February) the Department of Health and Social Care (DHSC) published an update on

Back in October 2023 we applied to take part in the Student Voice Prize and were pleased to be paired

We are pleased to announce the launch of our new Fact Sheet for Local Professionals. The fact sheet includes information