Policy News: Newly published Rare Disease Action Plan (England)

This year on Rare Disease Day (29th February) the Department of Health and Social Care (DHSC) published an update on

Student Voice Prize Essay – 2023 Entry

Back in October 2023 we applied to take part in the Student Voice Prize and were pleased to be paired

We are pleased to announce the launch of our new Fact Sheet for Local Professionals. The fact sheet includes information

We are pleased to invite anyone with a personal or professional connection to CJD and prion disease to attend our

A paper published this week in Nature Medicine reports the first evidence of Alzheimer’s disease that appears to have been

Nearly 15 years ago in May 2009, Paul’s Dad Colin was diagnosed with sporadic CJD. Just 4 months later, in