2024 Family Support Meeting – Registration now OPEN

We are pleased to invite anyone with a personal or professional connection to CJD and prion disease to attend our

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Research News: “Iatrogenic Alzheimer’s disease in recipients of cadaveric pituitary-derived growth hormone”

A paper published this week in Nature Medicine reports the first evidence of Alzheimer’s disease that appears to have been

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Hamburg Marathon for Colin

Nearly 15 years ago in May 2009, Paul’s Dad Colin was diagnosed with sporadic CJD. Just 4 months later, in

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Temporary helpline closure – 1 day

Due to staff availability, our helpline will be closed on Friday 19th January however our emails will be monitored and

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Marathon for Michelle

On 20th April 2023, Lee, his daughter, and their loved ones’ world was turned upside down when his wife Michelle

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Dry January in memory of Pat

In memory of her good friend Pat Conlon, who passed away from sporadic CJD in November 2012, Phil is taking

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