Temporary helpline closure – 1 day

Due to staff availability, our helpline will be closed on Friday 19th January however our emails will be monitored and

Marathon for Michelle

On 20th April 2023, Lee, his daughter, and their loved ones’ world was turned upside down when his wife Michelle

In memory of her good friend Pat Conlon, who passed away from sporadic CJD in November 2012, Phil is taking

Our 2023 Memorial Roll can be found on our website HERE. The Memorial Roll has now been arranged into alphabetical

We are please to share the following community update statement that has been released by Ionis Pharmaceuticals about their upcoming

Gemma works for Hays Travel. Her brother Carl passed away with vCJD on 5th February 2003. In memory of Carl