Marcella looks ahead to International CJD Awareness Day

Earlier this year, Marcella’s lovely mum Joanna passed away with sporadic CJD, just seven weeks after her diagnosis. International CJD

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Emelia’s 300ft bungee jump for CJD!

On the 22nd October 2023, Emelia Worricker completed an incredible 300ft bungee jump for the CJD Support Network, in memory

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Research news: Ionis community update statement

We are please to share the following community update statement that has been released by Ionis Pharmaceuticals about their upcoming
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International CJD Awareness Day 2023

12th November is International CJD Awareness Day. This year, on Sunday 12th November, our committee member Brian and coordinator Beth

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New awareness items available!

As you may know, for some time now we have stocked pens, pin badges and wrist bands to support people

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2023 Family Support Meeting 15th & 16th September

Our 2023 Family support Meeting was held on 15th & 16th September 2023 at St Anne’s College, Oxford. Over 45

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