Children’s Mental Health Week 2025

This week is Children’s Mental Health Week, a time when we are reminded of the unique challenges children and young

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Tom’s London Landmarks Half Marathon for Anne!

In just over two months, Tom Mullen will take on the London Landmarks Half Marathon – raising money and awareness

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Rare Disease Day (28th Feb) social media resources

On Friday 28th February we will come together with the global Rare Disease community to mark Rare Disease Day 2025.

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Update: Liam’s Kilimanjaro Challenge

We are thinking about Liam Stacey this week as he takes on the huge challenge of climbing Kilimanjaro for the

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Charlie’s Charity Night!

A big thank you from us to Linda Barbour, who is raising funds and awareness for CJD in memory of

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CJD Support Network represented at inaugural meeting of Rare, Genetic and Undiagnosed Conditions APPG

We are hugely grateful to Alice, who represented the CJD Support Network at the inaugural meeting for the All Part

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