On 21st February 2025, Peter Dowd MP – chair of the All Party Parliamentary Group (APPG) for Rare, Genetic and

We are excited to share a final update on Liam Stacey’s Kilimanjaro Challenge! On Friday 31st Liam completed a 6

This week is Children’s Mental Health Week, a time when we are reminded of the unique challenges children and young

In just over two months, Tom Mullen will take on the London Landmarks Half Marathon – raising money and awareness

On Friday 28th February we will come together with the global Rare Disease community to mark Rare Disease Day 2025.