Update: Liam’s Kilimanjaro Challenge

We are thinking about Liam Stacey this week as he takes on the huge challenge of climbing Kilimanjaro for the

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Charlie’s Charity Night!

A big thank you from us to Linda Barbour, who is raising funds and awareness for CJD in memory of

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CJD Support Network represented at inaugural meeting of Rare, Genetic and Undiagnosed Conditions APPG

We are hugely grateful to Alice, who represented the CJD Support Network at the inaugural meeting for the All Part

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Research news: Ionis community update statement

We are please to share the following community update statement that has been released by Ionis Pharmaceuticals about their clinical

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Cog’s Big Christmas Quiz!

A massive thank you from us to to Ian Cogbill, along with his family, friends, members of the local community

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Raising awareness in memory of Michelle

“Suddenly she went from this full-time working mummy to somebody who couldn’t walk.” Click HERE to read a story bravely

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