CJD Support Network represented at inaugural meeting of Rare, Genetic and Undiagnosed Conditions APPG
We are hugely grateful to Alice Groux, who represented the CJD Support Network at the inaugural meeting for the All Part Parliamentary Group (APPG) on Rare, Genetic and Undiagnosed Conditions at Portcullis House, raising political awareness of CJD and asking for research and diagnosis funding. Alice shares her personal experience of the meeting in the below article.
