Research update: Ionis Pharmaceuticals Clinical Trial

See below an update statement that has been released by Ionis Pharmaceuticals about their upcoming clinical trial. With thanks to

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Fundraising Update: Jimmy’s Marathon for Dianne

This Sunday (14th April), Jimmy will take on the Manchester Marathon in memory of his Aunt Dianne, who sadly passed

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Fundraising update: Marathon for Michelle

This Sunday (7th April), Lee Wilkins will take on the Brighton Marathon in memory of his beautiful wife, Michelle. Lee

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Fundraising Update: Alex’s London Landmarks Half Marathon

This Sunday (7th April 2024), Alex is taking part in the London Landmarks Half Marathon in memory of her step-dad

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JustGiving GoCardless Awards 2024 – Nominations open!

Do you have a JustGiving fundraising hero who has raised awareness and funds for the CJD community? JustGiving’s 2024 GoCardless

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Updated fact sheets now available!

As part of our commitment to providing accurate, up to date, un biased information, we regularly review our fact sheets.

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