Updates following our most recent ‘Support Survey’

Since 2024, The CJD Support Network has begun conducting an annual Support Survey to assess awareness, engagement and satisfaction with

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A group of people are standing together in a historical pub with ceiling timbers showing. They are wearing bright yellow 'CJD Support Network' t shirts and look happy. All ages are represented.

St. David’s Day Weekend in North Cornelly

This time last week, our Coordinator Beth and friend Jess were in sunny North Cornelly, celebrating St. David’s Day with

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Michelle’s Kilt Walk for William!

Michelle McCreath is preparing to take on the Glasgow Kilt Walk (Mighty Stride) in memory of William McCreath, raising funds

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Parliamentary Questions tabled on CJD and Prion Disease

On 21st February 2025, Peter Dowd MP – chair of the All Party Parliamentary Group (APPG) for Rare, Genetic and

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Final update: Liam’s Kilimanjaro Challenge!

We are excited to share a final update on Liam Stacey’s Kilimanjaro Challenge! On Friday 31st Liam completed a 6

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Research News: CJD Support Network research grant applications now open! – DEADLINE EXTENDED

We are pleased to announce a new call for Research Proposals from Early Career Researchers in Prion Diseases. Thanks to

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