Gabi’s Richmond Park Half!

Gabrielle Turner will take on the Richmond Park Half Marathon on 13th April – Raising funds and awareness for the

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Important Update: Charlie’s Charity Night!

We previously shared how grateful we are to Linda who is raising funds and awareness for CJD in memory of

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The CJD Support Network Engages with Policymakers for Rare Disease Day 2025

We are pleased to share an update below on the CJD Support Network’s engagement with policy makers around Rare Disease

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Updates following our most recent ‘Support Survey’

Since 2024, The CJD Support Network has begun conducting an annual Support Survey to assess awareness, engagement and satisfaction with

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A group of people are standing together in a historical pub with ceiling timbers showing. They are wearing bright yellow 'CJD Support Network' t shirts and look happy. All ages are represented.

St. David’s Day Weekend in North Cornelly

This time last week, our Coordinator Beth and friend Jess were in sunny North Cornelly, celebrating St. David’s Day with

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Michelle’s Kilt Walk for William!

Michelle McCreath is preparing to take on the Glasgow Kilt Walk (Mighty Stride) in memory of William McCreath, raising funds

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