2023 Memorial Roll

Our 2023 Memorial Roll can be found on our website HERE. The Memorial Roll has now been arranged into alphabetical

Research news: Ionis community update statement

We are please to share the following community update statement that has been released by Ionis Pharmaceuticals about their upcoming

Gemma works for Hays Travel. Her brother Carl passed away with vCJD on 5th February 2003. In memory of Carl

We aim to keep our helpline and email support open and accessible as much as possible over the festive period.

Liza’s dad, Peter Harrison, tragically passed away with sporadic CJD in June this year. In memory of her dad, and

Back in September we shared news that Charlotte won the draw for our Silver Bond place in the TCS London