Get in Touch
If your life has been touched by CJD and prion disease, whether personally or professionally, we are here to support you.
Ways to reach out
Call our helpline
Our helpline is open from 8am – 6pm, every Tuesday and Friday. Call us for a listening ear and support at: 0800 774 7317.
Join our Facebook community
Connecting with others who have shared experiences can be extremely supportive. Join our closed Facebook group.
Information
We offer a range of factsheets for individuals, families, and professionals wishing to learn more about CJD and prion diseases, and related topics. Visit our factsheets page or get in touch for more information.
Contact us via email
Not feeling up to talking on the phone? Contact our support email address at [email protected].
Care grants
We offer grants for those who are in need of financial support to care for a loved one with prion disease. Visit our care grants page or get in touch for more information.