In the recent reshuffles in Government, responsibility for rare disease policy has been transferred to Preet Kaur Gill, as the
We are glad to share a research update from the USA and the Broad Institute. The Institute, based in Cambridge
If you are in London between 22nd and 26th April, 2026, you are invited to an exhibition organised by Emma
Jodie has let us know that she is undertaking a step challenge in memory of her beloved Dad, Stafford, known
The National Diagnostic Advisory Service (NCJDAS) in the University of Edinburgh will cease operating on 31/3/26. From 1980 to 1984,
2026 has started on track for Cogs’s Clever Quizzes in South Wales. Ian says: A cold and damp Sunday on
We are delighted to share the first of what we will be many updates about fundraising activities in 2026. Macey
The CJD Support Network sends you and yours all best wishes for this festive season, and for the year ahead.
We are proud to stand with international CJD and prion disease support organisations today, 12th November, International CJD Awareness Day.
25 October 2025 saw Debbie Maginn’s family and friends reunite in what has become a yearly ‘Pink Day’ in memory