Hurst Hill Performers’ Magical Musical Tour!
The hugely talented members of the Hurst Hill Performers, run by Kate and Sheila, put on their 2025 Showcase: Magical
100 miles for Ian!
Aly, Cael and Blair Jappy (aged 6, almost 4 and 9 months) – with help from their mum, Erin –
Issues with email service [UPDATED]
We’re currently experiencing intermittent email issues with our [email protected] and [email protected] accounts. You may have trouble sending to or receiving
Update: Tom’s London Landmarks Half Marathon for Anne!
A huge CONGRATULATIONS from us to Tom Mullen who completed the London Landmarks Half Marathon on Sunday 6th April, raising
£30,000 raised by Biggar Young Farmers!
We are profoundly grateful to the Biggar Young Farmers for their exceptional fundraising efforts in support of the CJD Support
CJD Diagnosis, Care & Surveillance in the UK
Following the NIHR’s decision not to renew funding, the National CJD Research and Surveillance Unit (NCJDRSU), founded in 1990, ceased
Gabi’s Richmond Park Half!
Gabrielle Turner will take on the Richmond Park Half Marathon on 13th April – Raising funds and awareness for the
Important Update: Charlie’s Charity Night!
We previously shared how grateful we are to Linda who is raising funds and awareness for CJD in memory of
The CJD Support Network Engages with Policymakers for Rare Disease Day 2025
We are pleased to share an update below on the CJD Support Network’s engagement with policy makers around Rare Disease
Updates following our most recent ‘Support Survey’
Since 2024, The CJD Support Network has begun conducting an annual Support Survey to assess awareness, engagement and satisfaction with