Baroness Casey launches the Big Conversation on Social Care in England with the public
An Independent Commission on Adult Social Care is currently running under the leadership of Baroness Louise Casey. This may concern
Government Update: Responsibility for Rare Disease Policy
Update as of August 2026: Preet Kaur Gill has now left this post. No new holder has been announced as
The Broad Institute Announces First-in-Human Clinical Trial to Evaluate Potential New Drug: PrP-siRNA
We are glad to share a research update from the USA and the Broad Institute. The Institute, based in Cambridge
Julia Davenne: A Celebration of her Life in Art – An Exhibition in Support of the CJD Support Network
If you are in London between 22nd and 26th April, 2026, you are invited to an exhibition organised by Emma
100 Miles in May for Taff – A Daughter’s Tribute
Jodie has let us know that she is undertaking a step challenge in memory of her beloved Dad, Stafford, known
End of an Era for CJD Surveillance, Research and Support in the UK
The National Diagnostic Advisory Service (NCJDAS) in the University of Edinburgh will cease operating on 31/3/26. From 1980 to 1984,
Cogs’s Clever Quizzes for Darlene Well Underway for 2026, plus an Invitation
2026 has started on track for Cogs’s Clever Quizzes in South Wales. Ian says: A cold and damp Sunday on
Brighton Marathon for Louise
We are delighted to share the first of what we will be many updates about fundraising activities in 2026. Macey
Christmas and New Year Support Network E-Cards and Festive Season Opening Hours
The CJD Support Network sends you and yours all best wishes for this festive season, and for the year ahead.
International CJD Awareness Day 2025
We are proud to stand with international CJD and prion disease support organisations today, 12th November, International CJD Awareness Day.