Care Grants

The CJD Support Network awards care grants to those in financial need through caring for a relative with all forms of prion disease.

Care Grant Application Form

The CJD Support Network’s Caring Grants aim to provide support where there is a financial need that cannot be otherwise covered by statutory funding (i.e. continuing health care funding, local authority, NHS, or the CJD Care Fund). Previous care grants have been awarded for items and expenses including, but not limited to; equipment or home adaptations required due to illness progression, necessary travel, and one-off expenses for things that can provide relief or respite for patients and carers.

Grants are for up to £500 and repeat grants are not ordinarily given due to limited funds. Support for the request should be provided by relevant clinicians. Receipts, invoices, or similar documentation will be required where payment for goods or services cannot be made directly.

We welcome unique applications and will consider each carefully, taking into account the family’s situation.

Please complete the below form if you would like to be considered for a caring grant and we will aim to get back to you with an outcome or request for further information if needed, within 2 weeks of the application. If you have any queries regarding our caring grants or the application process, please contact [email protected]

Applicant's Information

Who is this grant for?

Address 1:

Address 2:

Town/City:

Post Code:

Your Information

Your name:

Address 1:

Address 2:

Town/City:

Post Code:

Phone Number:

Your relationship to this person:

Your Email Address:

Are you a member of the CJD Support Network?

NoYes

If yes, please give details:

Purpose of grant:

Amount of grant requested:

If the Care Grant is agreed, we will pay the grant directly to your bank account.

Name of the applicant’s bank or building society account:

Sort Code:

Account Number:

Have you received a caring grant before?

If yes, please give details:

NoYes

Are you a nurse from the NPC or National CJD?

YesNo

Upload file from Doctor (1/2)

No file chosen

Doctor's recommendation - The doctor’s recommendation should confirm that the person cared for has been diagnosed as having CJD, and should state the severity, duration and rate of progress of the disease. (It may be written by your GP or a hospital doctor).

Upload file from Health Professional or Social Worker (2/2)

No file chosen

The recommendation from a health professional or social worker should give an account of the circumstances of the person with CJD, their social need and what help has already been given by other services.

Please attach a letter signed by a medic (1/1)

No file chosen

If you are a nurse from the National Prion Clinic or the National CJD Research and Surveillance Unit completing and submitting the form on behalf of a patient, only the additional doctor’s recommendation letter is required.

Please upload a signature from applicant:

No file chosen

Care Grants

Care Grant Application Form

Applicant's Information

Your Information

Are you a member of the CJD Support Network?

Purpose of grant:

Amount of grant requested:

If the Care Grant is agreed, we will pay the grant directly to your bank account.

Have you received a caring grant before?

Are you a nurse from the NPC or National CJD?

Please upload a signature from applicant:

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