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We’re here to help

As the only UK charity dedicated to all forms of CJD and prion disease, we offer emotional and practical support to affected individuals and those at increased risk.

⸺ More about us

How can we help?

We offer information on CJD and prion diseases, provide guidance and support via telephone and email, and connect you with others who share similar experiences.

Watch our Video

A Friendly Voice

Reach our helpline at 0800 774 7317

Available Tuesdays and Fridays, 8am-6pm. We’ll respond as soon as possible to messages left outside these hours, or you can request a callback here.

Join In

Become part of our community by joining our mailing list here.

Let's Get Social

Join our Facebook community here.

Follow us on Facebook here, and X here.

News and Events

Visit our news and events pages for updates on recent and upcoming activities.

An Email Away

Contact us at [email protected] with any questions or support queries.

Fundraise

Our work relies entirely on fundraising and donations. Learn how to get involved by visiting our fundraising and donation pages.

WHO WE ARE

Our Story

KNOW THE FACTS

What is CJD?

WE ANSWER THE QUESTIONS

FAQ's

HELPING YOU

Useful Links

1 in 5,000

Is the lifetime risk of CJD

3 Types

CJD can be sporadic, genetic or acquired

20+ Years

We’ve offered support

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