How can we help?
We can provide information on the different forms of prion disease, guidance, and support by telephone and email, and connect you with others who have similar experiences.
A Friendly Voice
Call us on: 0800 774 7317
Our helpline is open from 8am-6pm on Tuesday & Friday. Messages left outside of these hours will be responded to as soon as possible.
Stay connected with us and remain up to date with our work by joining our mailing list here.
1 in 5,000
Is the lifetime risk of CJD
CJD can be sporadic, inherited or acquired
We’ve offered support