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Community

Learn about different ways that you can engage with others as a member of the UK CJD and prion disease community.

Join our email community

You can become a ‘community member’ by joining our email mailing list. Community members receive our quarterly newsletter and other occasional emails from us with updates on the information and support we offer, as well as opportunities to connect with others. Complete the form here to join.

Join our Facebook community

Our closed Facebook group offers a space for the UK CJD and prion disease community to come together to share, learn from and support one another. Click here to join the group.

Join a community event

Visit our events page here for opportunities to connect with members of the UK CJD and prion disease community at upcoming online and in person events.