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CJD Support Network

Events

Find opportunities to connect with others at one of our upcoming events including online peer support meetings and our annual in-person Family Support Meeting (FSM).

Upcoming Events

Former carers (bereavement) online peer support meeting

Date: 04/02/2025
Time: 6:00 pm - 7:00 pm
Location: Online (zoom)
Register
Bereaved-OPSG

Iatrogenic/Acquired CJD online peer support meeting

Date: 11/03/2025
Time: 6:00 pm - 7:00 pm
Location: Online (zoom)
Register
Iatrogenic OPSG

Genetic/Inherited prion disease online peer support meeting

Date: 18/03/2025
Time: 7:00 pm - 8:00 pm
Location: Online (zoom)
Register
Genetic prion disease OPSG

Sporadic CJD online peer support meeting

Date: 08/04/2025
Time: 6:00 pm - 7:00 pm
Location: Online (zoom)
Register
Sporadic OPSG

Genetic/Inherited prion disease online support meeting

Date: 06/05/2025
Time: 7:00 pm - 8:00 pm
Location: Online (zoom)
Register
Genetic prion disease OPSG

Former carers (bereavement) online peer support meeting

Date: 13/05/2025
Time: 6:00 pm - 7:00 pm
Location: Online (zoom)
Register
Bereaved-OPSG

Iatrogenic/Acquired CJD online peer support meeting

Date: 10/06/2025
Time: 6:00 pm - 7:00 pm
Location: Online (zoom)
Register
Iatrogenic OPSG

Sporadic CJD online peer support meeting

Date: 08/07/2025
Time: 6:00 pm - 7:00 pm
Location: Online (zoom)
Register
Sporadic OPSG

Genetic/Inherited prion disease online peer support meeting

Date: 15/07/2025
Time: 7:00 pm - 8:00 pm
Location: Online (zoom)
Register
Genetic prion disease OPSG

Former carers (bereavement) online peer support meeting

Date: 05/08/2025
Time: 6:00 pm - 7:00 pm
Location: Online (zoom)
Register
Bereaved-OPSG

Previous Events

Genetic/Inherited prion disease online peer support meeting

Date: 14/01/2025
Time: 7:00 pm - 8:00 pm
Location: Online (Zoom)
Register
Genetic prion disease OPSG

Sporadic CJD – online peer support meeting

Date: 07/01/2025
Time: 6:00 pm - 7:00 pm
Location: Online (zoom)
Register
Sporadic OPSG

Iatrogenic/Acquired prion disease – online peer support group

Date: 10/12/2024
Time: 6:00 pm - 7:00 pm
Register
Iatrogenic OPSG

Genetic prion disease – online peer support group

Date: 26/11/2024
Time: 7:00 pm - 8:00 pm
Register
Genetic prion disease OPSG

Former carers (bereaved) – online peer support group

Date: 19/11/2024
Time: 6:00 pm - 7:00 pm
Register
Bereaved OPSG

2024 Annual General Meeting

Date: 18/11/2024
Time: 6:00 pm - 7:00 pm
Register here
AGM

Informal in-person meet up – Edinburgh

Date: 09/11/2024
Time: 11:00 am - 4:00 pm
Location: Apex Hotel, 23-27 Waterloo Pl, Edinburgh, EH1 3BG
Contact us
20180706_edinburgh_calton_hill-16-9

Sporadic CJD – online peer support group

Date: 08/10/2024
Time: 6:00 pm - 7:00 pm
Register
Sporadic OPSG

Online Craft & Chat

Date: 17/09/2024
Time: 6:00 pm - 7:00 pm
Click here to join
Current carers coffee morning Online drop-in sessions – 5

Genetic prion disease – online peer support group

Date: 10/09/2024
Time: 7:00 pm - 8:00 pm
Register
Genetic prion disease OPSG