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Privacy Policy

If your life has been touched by CJD and prion disease, whether personally or professionally, we are here to support you.

Last updated: Tuesday, 27th August 2024

CJD Support (“us”, “we”, or “our”) operates the https://cjdsupport.co.uk website (the “Service”).

This page outlines our policies regarding the collection, use, disclosure, and retention of Personal Information when you use our Service. We are committed to ensuring that your privacy is protected and that your information is used only in accordance with this Privacy Policy.

Use and Sharing of Information

We will not use or share your information with anyone except as described in this Privacy Policy. Your Personal Information is utilised solely for the purpose of providing and enhancing the Service. By accessing and using our Service, you consent to the collection, use, and retention of information as outlined in this policy. Unless otherwise defined here, terms in this Privacy Policy carry the same meanings as in our Terms and Conditions, which can be accessed at https://cjdsupport.co.uk/.

Information Collection and Use

When you use our Service, we may request certain personally identifiable information that can be used to contact or identify you. This information (“Personal Information”) may include, but is not limited to:

– Name
– Email address
– Telephone number
– Address

Membership Fees and Contact Information

Please be informed that should there be any changes to membership fees, we will promptly notify all existing members, provided we have accurate and up-to-date contact information on file. Please note that any payments received for non-full memberships will be considered donations.

All personal information is handled in accordance with our privacy policy and data retention policy. Should you wish to update any aspect of your membership, please do not hesitate to contact us. We also offer the option to be removed from our membership mailing list upon request. To do so, please email us at [email protected].

Please be aware that we use Mailchimp for storing personal information. You can review their privacy policy here: https://mailchimp.com/legal/.

Data Retention

We retain your Personal Information only for as long as is necessary to fulfil the purposes for which it was collected, including for the purposes of satisfying any legal, accounting, or reporting requirements. The retention period for personal data varies depending on the nature of the data and the purpose for which it was collected. For example:

  • Membership information is retained for the duration of your membership and for a reasonable period thereafter, as required by law or as necessary to address any queries or disputes.
  • Information obtained via telephone or email is retained for the duration of ongoing contacts and for a reasonable period thereafter, as required by law or necessary to address any queries or disputes.
  • Log Data and cookies are retained as needed to support and improve the Service.

Once your Personal Information is no longer necessary for these purposes, we will securely delete or anonymise it.

Log Data

We collect information that your browser sends whenever you visit our Service (“Log Data”). This Log Data may include details such as your computer’s Internet Protocol (“IP”) address, browser type, browser version, the specific pages of our Service that you visit, the time and date of your visit, the duration spent on those pages, and other relevant statistics.

Cookies

Cookies are small data files that may include an anonymous unique identifier. These cookies are sent to your browser from our website and stored on your device’s hard drive. We use cookies to gather information and enhance your experience on our Service. You can instruct your browser to refuse all cookies or to alert you when a cookie is being sent; however, please note that some portions of our Service may not function properly if you disable cookies.

Service Providers

We may engage third-party companies and individuals to support our Service, including facilitating the Service, providing the Service on our behalf, performing Service-related functions, or assisting in analysing how our Service is utilised. These third parties may have access to your Personal Information solely to perform these tasks on our behalf and are legally obligated not to disclose or use it for any other purpose.

Security

The security of your Personal Information is a priority for us. While we strive to implement commercially acceptable measures to protect your Personal Information, please be aware that no method of transmission over the Internet or electronic storage is completely secure. We cannot guarantee the absolute security of your data but are committed to doing our utmost to protect it.

Links to Other Sites

Our Service may contain links to external sites that are not operated by us. If you click on a third-party link, you will be directed to that third party’s website. We strongly encourage you to review the Privacy Policy of every site you visit. We have no control over and assume no responsibility for the content, privacy policies, or practices of any third-party sites or services.

Children’s Privacy

Our Service is not intended for use by anyone under the age of 18 (“Children”). We do not knowingly collect personally identifiable information from children under 18. If you are a parent or guardian and become aware that your child has provided us with Personal Information, please contact us immediately. If we learn that we have inadvertently collected Personal Information from a child under 18, we will take steps to delete such information promptly.

Compliance With Laws

We will never disclose your Personal Information unless required to do so by law or in response to a legal subpoena.

Changes to This Privacy Policy

We may revise this Privacy Policy periodically. Any changes will be posted on this page, and we will provide notification of significant changes by updating the date at the top of this Privacy Policy. We recommend that you review this Privacy Policy periodically to stay informed of any updates. Continued use of our Service following the posting of changes constitutes your acceptance of those changes.

Contact Us

If you have any questions, concerns, or requests regarding this Privacy Policy, please feel free to contact us at [email protected].