Spring 2022 Newsletter now available!
The CJD Support Network is pleased to announce that our latest Newsletter (Jan 2022) is now available. Please click here for access.
2021 Christmas e-cards now available!
At the CJD Support Network, we know that the festive period can be challenging for those who are caring for
Coronavirus and the CJD Support Network
Service as normal We would like to assure everyone that the CJD Support Network services continue to be available during
2021 Family Support Day at the Macdonald Hotel, Manchester
2021 Family Support Day at the Macdonald Hotel, Manchester, including 2021 Annual General Meeting (AGM). For further information on the
CJDSN Family Support Day – Saturday 13th November 2021, Manchester
Our Family Support Day was held on Saturday 13th November at the Macdonald Manchester Hotel. Talks were heard from various
New Coordinator Appointed to the CJD Support Network
The CJD Support Network has appointed Beth Marsh as the new National Coordinator. Beth commenced the role in November 2021,
Online support session: managing the symptoms of CJD: Advice for carers
Online support session: managing the symptoms of CJD: Advice for carers. Delivered by Phil Parker (Lead Nurse, National Prion Clinic)
Online 2020 Family Support Meeting – Session 2
Online 2020 Family Support Meeting, session 2: Talking about grief and loss. Delivered by Jill Walton (Rare Dementia Support) and Dr
Online 2020 Family Support Meeting – Session 3
Online 2020 Family Support Meeting, session 3: Genetic forms of CJD and risk in families. Delivered by Professor Simon Mead
2020 Annual General Meeting
2020 Annual General Meeting (completed online due to coronavirus restrictions). To access the minutes of this meeting, click here.