The CJD Support Network has appointed Beth Marsh as the new National Coordinator. Beth commenced the role in November 2021, succeeding the original Coordinator, Gillian Turner who has retired from this role, which she had held since 1995.

Beth has been involved with the CJD Support Network committee since attending her first family support day in 2016, after losing her father to sporadic CJD. With a background in mental health and personal experience with the disease, Beth is committed to the network’s aims of providing emotional and practical support to those affected by all forms of CJD, and those at increased risk.

Beth says: “I’m keen to build on the fantastic work the CJD Support Network already does in supporting and connecting people affected by CJD. I’d be delighted to hear from anyone who has fundraising or support ideas for the network and how we might continue to help in the best way we can.”

From November 2021, the CJD Support Network Helpline will be open 8am – 6pm on Tuesdays and Fridays, any messages received outside of these hours will be followed up as soon as possible. Alternatively, you can email [email protected]. Administrative and general enquiries should be directed to [email protected].

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