Our first regional informal peer support group meeting
Our first regional informal peer support group meetings were held, virtually, throughout August. See our Autumn 2022 newsletter here for feedback from
Join us at one of our upcoming online support meetings!
We are pleased to announce that we are piloting a series of online peer support meetings, split by general geographical
Routine registration for 2022 Family Support Meeting now closed
Our 2022 Family Support Meeting will take place on 10th September in Oxford. Though routine registration closed on 15th July, please do
Invitation to attend our 2022 Family Support Meeting
We are pleased to announce that this year’s Family Support Meeting is booked for Friday 9th & Saturday 10th September,
The Big Give Christmas Challenge 2022
The CJD Support Network UK is delighted to be taking part in the ‘Big Give Christmas Challenge’, an annual match
Summer 2022 Newsletter now available!
The CJD Support Network is pleased to announce that our latest Newsletter (Summer 2022) is now available. Please click here for access.
Restricted service 5th-19th April
The CJD Support Network will be temporarily unable to respond to emails between 5th and 19th April, our management committee
Results of PRN100 treatment programme published
Researchers at the Medical Research Council (MRC) Prion Unit at University College London (UCL) developed a monoclonal antibody, called PRN100,
First Newsletter of 2022 available now
Having last published a Newsletter in July 2019, the CJD Support Network is pleased to announce that our latest Newsletter
New glossary of terms relevant to prion disease
The language and terms we hear used around CJD and prion disease can be unfamiliar and this can feel overwhelming,