We aim for this to be a welcoming, friendly and informative day with opportunities to meet others, learn more about CJD and prion diseases, be updated about the current context of CJD and prion disease research and treatment, and share time together. There is plenty of space to step away if you need to, and no expectations on anyone other than to contribute to a safe environment for all. Attendees include leading clinical experts and many of our Trustees, alongside both first time attendees and regular visitors. Family has a broad meaning, including friends and chosen family.
Date: Saturday 12th September
(with option to join us in the College Bar from 21:30 as the Friday meal numbers are now confirmed on Friday 11th)
Location: St Anne’s College, Oxford
Information: We would be delighted to welcome anyone with a personal connection to any form of prion disease to attend. The meeting will involve talks, time for connecting with one another, and space for speaking with national experts. The main meeting on Saturday 12th September will not only include lunch, but also an optional informal buffet to round off the day in a supportive and social way. There will also be the usual option of joining us for a meal the previous evening (Friday 11th September).
There is no cost to attend the meeting, and all catering will be covered during the day.
Overnight bed and breakfast accommodation is available at the venue on the Friday and Saturday evening (subject to availability) at attendee’s own cost. This is at a subsidised rate of £43 for an en suite single bedroom. Further information will be sent regarding accommodation following registration.
If travel costs might deter you coming along, please contact us at support@cjdsupport.co.uk
Programme
Friday 11th
19:00 for 19:30: Welcome Dinner – Full to new registrants as of 6th September.
Opportunity to continue to meet others at the College bar afterwards, including any registrants after 6th September.
Isle of Wight Tomato
Parmesan espuma – Cured Trout
(V) Vegetable rennet parmesan – Balsamic Beetroot
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Roasted Monkfish
Bisque-Potato Rosti-Courgette Compote
(V) Jericho Cheese & Spinach Pastry Samosa
Lentil Cream-Potato Rosti-Courgette Compote
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Citron Tart
Strawberry-Meringue
Saturday 12th September
07:30-09:00 Breakfast for those staying on site or who have booked in.
Registration and refreshments
09:15 Welcome and introductions
09:30 Session 1: Overview of Prion Diseases and Research/Treatment Update
10:45 Icebreaker / morning break
11:15 Session 2: CJD Support Network Research Grant Update and Grief & Loss with Dr Victoria Bradley
12:10 -13:30 Lunch
(Plant Based) Smoky Three Bean Chilli
Slow Cooked Carnitas Pork
Quinoa & Coriander
Seasonal Vegetables
Tortillas
Mixed Leaf Salad
(PB) Mexican Chopped Salad
(PB) Black Bean, Lime and Coriander Salad
Artisan Dried Breads
Salad Dressing, Sour Cream, Guacamole
Dessert Tray
13:45 Session 3: Q&A for Presubmitted Questions and Discussion Groups
14: 45 Discussion Groups are flexible and you can move between groups as suits you.
- Grief
- The Future of the CJD Support Network – a chance for you to ask questions and offer your thoughts on the charity’s work
- Focus on Sporadic and Iatrogenic CJD
- Focus on Genetic Prion Diseases
16:15 Closing remarks
17:00-19:00 Early evening buffet (for those booked to attend) with card bar
(PB) Spinach and Kale Falafels
(V) Vegetarian Quiche Selection
(V) Jericho Cheeses
Oxfordshire Cured Meats
Smoked Salmon
Sourdough
Mixed Leaf Salad
Local Tomato Salad
Barley, Cucumber Pickle & Salsa Verde
Artisan Dried Breads
Salad Dressing
Honey Mustard Mayo
Onion Chutney
Sunday 13th September
Breakfast for those staying on site or who have booked in.
Departure.
Contact us at support@cjdsupport.co.uk or on 0800 774 7317 if you have any questions or queries.
Registration
Ready to join us for the day? Click here to register.
Travel Information
Click here to go to Google Maps to request directions to St Anne’s College. Please note that using public transport and Park & Ride may be helpful as parking is very expensive and not plentiful in Oxford.
Click here for walking directions from Oxford Railway Station to St Anne’s College.
If you hold a Blue Badge, there is on street parking on Bevington Road, next to St Anne’s College.
Park and Ride
The most direct bus links to St Anne’s are the 300 Bus from Peartree and Redbridge Park & Rides, then Oxford Parkway.
Click here for public transport directions from Oxford Peartree Park & Ride (North of Oxford)
Click here for public transport directions from Oxford Redbridge Park & Ride (South of Oxford
Click here for public transport directions from Oxford Parkway Park & Ride (North of Oxford)
Click here for public transport directions from Oxford Thornhill Park and Ride (East Oxford)
Click here for public transport directions from Oxford Seacourt Park and Ride (West of Oxford)