We are pleased to invite anyone who would like to join us in an online peer support meeting for anyone who has a connection to sporadic CJD. Our hope is that the peer support meeting provides an opportunity to listen, share, and connect with others. The group will be led by 1-2 members of our committee, most of whom have been personally affected by CJD in some way.
Ground rules
To help ensure the groups are a safe space for everyone attending, we have set out some ground rules below that we would like to respectfully ask you to read through and be mindful of before registering:
We share responsibility for making the group work, being mindful of taking care of ourselves and each other
We uphold confidentiality – what is said in the group is not repeated or discussed elsewhere
We are here to share our feelings and experiences; we try not to give advice unless someone asks
We respect and accept people, just as they are, and we avoid making judgements
We make space for everyone in the group to share, giving supportive attention to whoever is speaking
We understand that group members have the right not to share or answer questions if the prefer