We are very pleased to share an important update ahead of our CJDSN Family Support Meeting next week.
Thanks to generous support from CJD International Support Alliance (CJDISA), we can offer funded places to assist with travel and accommodation costs for attendees. The meeting itself and all meals are free thanks to our fundraisers and donors. We hope this support makes it easier for families to join us and take part in the weekend.
We are a proud member organisation of CJDISA, an international coalition formed by grassroots nonprofit organisations working on behalf of patients and families affected by prion disease and those at risk worldwide.
Our annual in‑person event is open to anyone with a personal connection to any form of prion disease. The programme includes talks, opportunities to connect with other families, and time to speak with national experts. The main meeting on Saturday 12 September will include lunch and an optional informal buffet to round off the day in a supportive, social setting. There is also the usual option to join us for a meal on Friday 11 September.
There is no cost to attend the meeting and all daytime catering will be provided. Accommodation is available on site at £43 per person per night including breakfast which could be part of the support offered.
If you would like to apply for travel or accommodation support, please email admin@cjdsupport.co.uk with:
- Your connection to prion disease
- Estimated travel and accommodation costs
- Any other information that will help us assess your request
Please also complete the Registration Form via the Events page. All applications will be handled confidentially and we will confirm arrangements as quickly as possible.
We are very grateful to CJDISA for this support and look forward to welcoming you for a meaningful and supportive weekend together.
