CJDSN Family Support Meeting 12 September – CJDISA Funded Places
We are very pleased to share an important update ahead of our CJDSN Family Support Meeting next week. Thanks to
Lito Sousa – CJD Diagnosis and Queries
The CJD Support Network was saddened, as we always are with any diagnosis of a prion disease, to learn of
The Broad Institute Announces First-in-Human Clinical Trial to Evaluate Potential New Drug: PrP-siRNA
We are glad to share a research update from the USA and the Broad Institute. The Institute, based in Cambridge
International CJD Awareness Day 2025
We are proud to stand with international CJD and prion disease support organisations today, 12th November, International CJD Awareness Day.
International CJD Awareness Day 2025 – Social Media Resources
12th November is International CJD Awareness Day. This is a day when members of the prion disease community around the
Update: Tom’s London Landmarks Half Marathon for Anne!
A huge CONGRATULATIONS from us to Tom Mullen who completed the London Landmarks Half Marathon on Sunday 6th April, raising
The CJD Support Network Engages with Policymakers for Rare Disease Day 2025
We are pleased to share an update below on the CJD Support Network’s engagement with policy makers around Rare Disease
Cog’s Big Christmas Quiz!
A massive thank you from us to to Ian Cogbill, along with his family, friends, members of the local community
Raising awareness in memory of Michelle
“Suddenly she went from this full-time working mummy to somebody who couldn’t walk.” Click HERE to read a story bravely
Fundraising in memory of Tracey
Last week, our coordinator Beth visited Hereford Tesco, as they presented a cheque to the CJD Support Network for funds