Committee introductions – Lizzie Hill
Over the coming weeks and months we will be introducing our wonderful committee members, sharing more information about them through
Marcella looks ahead to International CJD Awareness Day
Earlier this year, Marcella’s lovely mum Joanna passed away with sporadic CJD, just seven weeks after her diagnosis. International CJD
Emelia’s 300ft bungee jump for CJD!
On the 22nd October 2023, Emelia Worricker completed an incredible 300ft bungee jump for the CJD Support Network, in memory
Research news: Ionis community update statement
We are please to share the following community update statement that has been released by Ionis Pharmaceuticals about their upcoming
International CJD Awareness Day 2023
12th November is International CJD Awareness Day. This year, on Sunday 12th November, our committee member Brian and coordinator Beth
New awareness items available!
As you may know, for some time now we have stocked pens, pin badges and wrist bands to support people
2023 Family Support Meeting 15th & 16th September
Our 2023 Family support Meeting was held on 15th & 16th September 2023 at St Anne’s College, Oxford. Over 45
Ruthless Ravers Tough Mudder challenge!
Earlier this year, Vicky and Grace (the ‘Ruthless Ravers’) took on Tough Mudder, raising a fantastic £170 for the CJD
London Marathon in memory of Richard Hall
This year we have been awarded a Silver Bond place in the 2024 TCS London Marathon. We received a number
Stanford Hall Mini Show in memory of Gary
Jake Adams, his mum Jean, and family recently attended the Stanford Hall Mini Show and ran a stall to raise