Temporary helpline closure – 1 day
Due to staff availability, our helpline will be closed on Friday 19th January however our emails will be monitored and
Marathon for Michelle
On 20th April 2023, Lee, his daughter, and their loved ones’ world was turned upside down when his wife Michelle
Dry January in memory of Pat
In memory of her good friend Pat Conlon, who passed away from sporadic CJD in November 2012, Phil is taking
2023 Memorial Roll
Our 2023 Memorial Roll can be found on our website HERE. The Memorial Roll has now been arranged into alphabetical
Research news: Ionis community update statement
We are please to share the following community update statement that has been released by Ionis Pharmaceuticals about their upcoming
Christmas market in Carl’s memory
Gemma works for Hays Travel. Her brother Carl passed away with vCJD on 5th February 2003. In memory of Carl
Helpline open/closure dates across the festive period
We aim to keep our helpline and email support open and accessible as much as possible over the festive period.
Christmas bake sale!
Liza’s dad, Peter Harrison, tragically passed away with sporadic CJD in June this year. In memory of her dad, and
Fundraising update: London Marathon in memory of Richard Hall
Back in September we shared news that Charlotte won the draw for our Silver Bond place in the TCS London
Panshangar Ladies Golf competition to support the network
On 7th November, the Panshanger Ladies Golf Club held a competition and collection at their annual general meeting to raise