Donation in memory of Marysia
We are extremely grateful to have received a fantastic £2,000 from Joseph Swiatczak in memory of his beautiful wife Marysia
Bake sale for CJDSN
On the 19th August, Andrea organised an office bake sale, raising funds and awareness of CJD and prion disease in
Ian’s August quiz in memory of Darlene
You may remember that we shared news back in June of Ian’s pub quiz in memory of his beloved wife
Cardiff Half in memory of Zoe
On 6th October this year, Jagan Crane will take on the Cardiff Half Marathon in loving memory of his Auntie
3 half marathons in 3 months for Rob!
Claire Swain has set up a fundraising campaign in loving memory of a wonderful Dad, Grandad, Husband, Brother, Uncle –
Service closure – 23rd August (full day)
Our helpline and email service will be closed on Friday 23rd August. Please do continue to contact us and we
Research news: Ionis community update statement
We are please to share the following community update statement that has been released by Ionis Pharmaceuticals about their ongoing
Three months to go! International CJD Awareness Day
This year, as every year, the CJD Support Network will be marking International CJD Awareness Day on 12th November. Below
Newly added ‘Real Story’ – Paula Dyson
We are deeply moved to share a personal story recently contributed by Anthony Dyson, whose mum Paula passed away with
2024 Family Support Meeting – Registration now closed
With just 6 weeks to go, registration for our 2024 Family Support Meeting (6th and 7th September) is now closed.