Research news: Ionis community update statement
We are please to share the following community update statement that has been released by Ionis Pharmaceuticals about their upcoming
International CJD Awareness Day 2023
12th November is International CJD Awareness Day. This year, on Sunday 12th November, our committee member Brian and coordinator Beth
New awareness items available!
As you may know, for some time now we have stocked pens, pin badges and wrist bands to support people
2023 Family Support Meeting 15th & 16th September
Our 2023 Family support Meeting was held on 15th & 16th September 2023 at St Anne’s College, Oxford. Over 45
Ruthless Ravers Tough Mudder challenge!
Earlier this year, Vicky and Grace (the ‘Ruthless Ravers’) took on Tough Mudder, raising a fantastic £170 for the CJD
London Marathon in memory of Richard Hall
This year we have been awarded a Silver Bond place in the 2024 TCS London Marathon. We received a number
Stanford Hall Mini Show in memory of Gary
Jake Adams, his mum Jean, and family recently attended the Stanford Hall Mini Show and ran a stall to raise
Raffle prize spotlight: Original Watercolour Painting
Over the coming weeks and months we will be sharing more information about the prizes in our 2023 Annual Raffle.
Manchester Marathon in Memory of Val
In April 2024, Leon Perkin will challenge himself to take on the Manchester Marathon in memory of his girlfriend’s mum,
Sam’s birthday drinks for CJD
Sam Edward’s mum Sarah passed away in 2022, a month after being diagnosed with Sporadic CJD. This year, Sam turns