CJDSN Family Support Meeting 12 September – CJDISA Funded Places
We are very pleased to share an important update ahead of our CJDSN Family Support Meeting next week. Thanks to
Lito Sousa – CJD Diagnosis and Queries
The CJD Support Network was saddened, as we always are with any diagnosis of a prion disease, to learn of
Baroness Casey launches the Big Conversation on Social Care in England with the public
An Independent Commission on Adult Social Care is currently running under the leadership of Baroness Louise Casey. This may concern
Government Update: Responsibility for Rare Disease Policy
Update as of August 2026: Preet Kaur Gill has now left this post. No new holder has been announced as
The Broad Institute Announces First-in-Human Clinical Trial to Evaluate Potential New Drug: PrP-siRNA
We are glad to share a research update from the USA and the Broad Institute. The Institute, based in Cambridge
Julia Davenne: A Celebration of her Life in Art – An Exhibition in Support of the CJD Support Network
If you are in London between 22nd and 26th April, 2026, you are invited to an exhibition organised by Emma