November 12th is International CJD Awareness Day. Every year, we invite those who have lost someone to CJD to share photos of their loved ones with us. This year’s video can be seen on YouTube here. Each year the CJD Support Network invites people to share photos of their loves ones lost to prion disease. We add these to our video, creating a history of love and remembrance. Thank you to those who have shared their memories with us this year, and in the past.
This year, the CJD Support Network will be sharing posts every two hours from 9am via our Facebook page. Prion diseases, including Creutzfeldt-Jakob disease (CJD), are rare, rapidly progressive and currently incurable neurological diseases. Yet despite their rarity, their impact on patients, families and communities is profound.
Today is an opportunity to increase understanding, challenge misconceptions, highlight the importance of research, and remember all those whose lives have been affected by CJD and other prion diseases.
Follow us throughout the day as we share information, personal stories and developments from the world of prion disease research via our National Coordinator’s updates from Prion 2026, the annual prion scientific conference currently taking place in Verona.
We will also post a summary of all posts here on our website in due course.
Posts will be tagged #InternationalCJDAwarenessDay #CJDAwareness #PrionDisease #RareDisease
Please feel free to join us in sharing and reposting to raise awareness, but we understand if you may also wish to mute these tags, depending on how today finds you.
