Research update: Ionis Pharmaceuticals Clinical Trial
See below an update statement that has been released by Ionis Pharmaceuticals about their upcoming clinical trial. With thanks to
Fundraising Update: Jimmy’s Marathon for Dianne
This Sunday (14th April), Jimmy will take on the Manchester Marathon in memory of his Aunt Dianne, who sadly passed
Fundraising update: Marathon for Michelle
This Sunday (7th April), Lee Wilkins will take on the Brighton Marathon in memory of his beautiful wife, Michelle. Lee
Fundraising Update: Alex’s London Landmarks Half Marathon
This Sunday (7th April 2024), Alex is taking part in the London Landmarks Half Marathon in memory of her step-dad
Updated fact sheets now available!
As part of our commitment to providing accurate, up to date, un biased information, we regularly review our fact sheets.
Will & Danny’s London Marathon Fundraising Event!
Will and Danny are both running the London Marathon this year and will split their fundraising between the CJD Support
Reflections on 7 years of Committee Membership
We are sad to announce that Annette Beal (pictured with beloved husband, Mick), who has been a member of the
Manchester Marathon for Dianne
This April, Jimmy Jarvis is taking on Manchester Marathon to raise funds and awareness for CJD, Jimmy says: “I am
Policy News: Newly published Rare Disease Action Plan (England)
This year on Rare Disease Day (29th February) the Department of Health and Social Care (DHSC) published an update on
Student Voice Prize Essay – 2023 Entry
Back in October 2023 we applied to take part in the Student Voice Prize and were pleased to be paired