International CJD Awareness Day 2025 – Social Media Resources
12th November is International CJD Awareness Day. This is a day when members of the prion disease community around the
Claverley Cricket Club Fundraising Match in Memory of Louise Barnes
On a beautiful day in July, Claverley Cricket Club hosted a match to raise funds for the CJD Support Network
New National Coordinator and Helpline Hours for the CJD Support Network
L-R: Catherine, Beth In our Spring 2025 newsletter, Beth announced her intention to step down as our National Coordinator. After
Claire’s 100 Miles in One Year
After raising £1,175 in memory of her dad, Robert John O’Sullivan in 2024, Claire Swain and her friends and family
Barry’s Cardiff Half for John
In October, Barry Cawte is taking on the Cardiff Half Marathon in memory of John Crabbe, his father-in-law and friend
Membership Fee Update
We are pleased to share that the governing body of the CJD Support Network has decided to reduce our ‘Supporter
NHS 10 Year Plan For England Launched
The new NHS 10 year plan was launched on Monday 7th July, described by Secretary of State for Health and
Salmaan’s Manchester Half Marathon!
On 12th October 2025, Salmaan Abbas will take on the Manchester Half Marathon to raise funds and awareness for The
Ian’s 2025 Horse Racing Fundraiser!
On 21st June 2025, Ian Cogbill held his second Horse Racing Fundraiser for The CJD Support Network at the New
UK international risk status for BSE downgraded
The UK’s risk rating status for Bovine Spongiform Encephalopathy (BSE) has been downgraded to negligible by the World Organisation for