Update: Tom’s London Landmarks Half Marathon for Anne!
A huge CONGRATULATIONS from us to Tom Mullen who completed the London Landmarks Half Marathon on Sunday 6th April, raising
£30,000 raised by Biggar Young Farmers!
We are profoundly grateful to the Biggar Young Farmers for their exceptional fundraising efforts in support of the CJD Support
CJD Diagnosis, Care & Surveillance in the UK
Following the NIHR’s decision not to renew funding, the National CJD Research and Surveillance Unit (NCJDRSU), founded in 1990, ceased
Gabi’s Richmond Park Half!
Gabrielle Turner will take on the Richmond Park Half Marathon on 13th April – Raising funds and awareness for the
Important Update: Charlie’s Charity Night!
We previously shared how grateful we are to Linda who is raising funds and awareness for CJD in memory of
The CJD Support Network Engages with Policymakers for Rare Disease Day 2025
We are pleased to share an update below on the CJD Support Network’s engagement with policy makers around Rare Disease
Updates following our most recent ‘Support Survey’
Since 2024, The CJD Support Network has begun conducting an annual Support Survey to assess awareness, engagement and satisfaction with
St. David’s Day Weekend in North Cornelly
This time last week, our Coordinator Beth and friend Jess were in sunny North Cornelly, celebrating St. David’s Day with
Michelle’s Kilt Walk for William!
Michelle McCreath is preparing to take on the Glasgow Kilt Walk (Mighty Stride) in memory of William McCreath, raising funds
Parliamentary Questions tabled on CJD and Prion Disease
On 21st February 2025, Peter Dowd MP – chair of the All Party Parliamentary Group (APPG) for Rare, Genetic and