Informal meet up for International Awareness Day
We held an informal peer support meet up in Edinburgh on Saturday 9th November, marking the weekend closest to International
Upcoming closure dates
Our office and helpline will be closed on Friday 18th, Tuesday 22nd and Friday 25th October. We will also have
2024 Family Support Meeting
The CJD Support Network Family Support Meeting took place in Chester this year on 6th and 7th September. On Friday
Newly added ‘Real Story’ – Paula Dyson
We are deeply moved to share a personal story recently contributed by Anthony Dyson, whose mum Paula passed away with
Limited service next week
Due to staff leave, we will be running a limited service on our usual opening days of Tuesday and Friday
New Fact Sheet Available – for Local Professionals
We are pleased to announce the launch of our new Fact Sheet for Local Professionals. The fact sheet includes information
2024 Family Support Meeting – Registration now OPEN
We are pleased to invite anyone with a personal or professional connection to CJD and prion disease to attend our
Temporary helpline closure – 1 day
Due to staff availability, our helpline will be closed on Friday 19th January however our emails will be monitored and
New fact sheet uploaded: Bereavement by CJD
Head to the fact sheets page of our website to read our brand new fact sheet on ‘Bereavement by CJD’.
Committee introductions – Lizzie Hill
Over the coming weeks and months we will be introducing our wonderful committee members, sharing more information about them through