Newly added ‘Real Story’ – Paula Dyson
We are deeply moved to share a personal story recently contributed by Anthony Dyson, whose mum Paula passed away with
Limited service next week
Due to staff leave, we will be running a limited service on our usual opening days of Tuesday and Friday
New Fact Sheet Available – for Local Professionals
We are pleased to announce the launch of our new Fact Sheet for Local Professionals. The fact sheet includes information
2024 Family Support Meeting – Registration now OPEN
We are pleased to invite anyone with a personal or professional connection to CJD and prion disease to attend our
Temporary helpline closure – 1 day
Due to staff availability, our helpline will be closed on Friday 19th January however our emails will be monitored and
New fact sheet uploaded: Bereavement by CJD
Head to the fact sheets page of our website to read our brand new fact sheet on ‘Bereavement by CJD’.
Committee introductions – Lizzie Hill
Over the coming weeks and months we will be introducing our wonderful committee members, sharing more information about them through
International CJD Awareness Day 2023
12th November is International CJD Awareness Day. This year, on Sunday 12th November, our committee member Brian and coordinator Beth
2023 Family Support Meeting 15th & 16th September
Our 2023 Family support Meeting was held on 15th & 16th September 2023 at St Anne’s College, Oxford. Over 45
Check out our new Equity, Diversity, and Inclusion (EDI) policy
At the CJD Support Network we are committed to promoting and upholding equity, diversity, and inclusion (EDI) in all areas