International CJD Awareness Day 2025
We are proud to stand with international CJD and prion disease support organisations today, 12th November, International CJD Awareness Day.
National CJD Care Fund & CJD Support Network Care Grants
For individuals and families affected by Creutzfeldt-Jakob Disease (CJD) and related prion diseases, navigating care and financial support can be
Issues with email service [UPDATED]
We’re currently experiencing intermittent email issues with our [email protected] and [email protected] accounts. You may have trouble sending to or receiving
Informal meet up for International Awareness Day
We held an informal peer support meet up in Edinburgh on Saturday 9th November, marking the weekend closest to International
Upcoming closure dates
Our office and helpline will be closed on Friday 18th, Tuesday 22nd and Friday 25th October. We will also have
2024 Family Support Meeting
The CJD Support Network Family Support Meeting took place in Chester this year on 6th and 7th September. On Friday
Newly added ‘Real Story’ – Paula Dyson
We are deeply moved to share a personal story recently contributed by Anthony Dyson, whose mum Paula passed away with
Limited service next week
Due to staff leave, we will be running a limited service on our usual opening days of Tuesday and Friday
New Fact Sheet Available – for Local Professionals
We are pleased to announce the launch of our new Fact Sheet for Local Professionals. The fact sheet includes information
2024 Family Support Meeting – Registration now OPEN
We are pleased to invite anyone with a personal or professional connection to CJD and prion disease to attend our