We held an informal peer support meet up in Edinburgh on Saturday 9th November, marking the weekend closest to International CJD Awareness Day with an opportunity for connection and support.Fifteen of us met in a centrally located hotel, tea and coffee were provided and the conversation flowed, with positive feedback from attendees:
“It was nice to meet people face to face…
Discussing events always brings back emotions but I actually took a lot from today and will watch for any further opportunities to connect with you going forward.”
A big thank you to all who attended, and staff from the locally based National Nursing Team and NCJDRSU who also came along to support.
