The CJD Support Network Engages with Policymakers for Rare Disease Day 2025
We are pleased to share an update below on the CJD Support Network’s engagement with policy makers around Rare Disease
Updates following our most recent ‘Support Survey’
Since 2024, The CJD Support Network has begun conducting an annual Support Survey to assess awareness, engagement and satisfaction with
St. David’s Day Weekend in North Cornelly
This time last week, our Coordinator Beth and friend Jess were in sunny North Cornelly, celebrating St. David’s Day with
Michelle’s Kilt Walk for William!
Michelle McCreath is preparing to take on the Glasgow Kilt Walk (Mighty Stride) in memory of William McCreath, raising funds
Parliamentary Questions tabled on CJD and Prion Disease
On 21st February 2025, Peter Dowd MP – chair of the All Party Parliamentary Group (APPG) for Rare, Genetic and
Final update: Liam’s Kilimanjaro Challenge!
We are excited to share a final update on Liam Stacey’s Kilimanjaro Challenge! On Friday 31st Liam completed a 6
Research News: CJD Support Network research grant applications now open! – DEADLINE EXTENDED
We are pleased to announce a new call for Research Proposals from Early Career Researchers in Prion Diseases. Thanks to
Children’s Mental Health Week 2025
This week is Children’s Mental Health Week, a time when we are reminded of the unique challenges children and young
Tom’s London Landmarks Half Marathon for Anne!
In just over two months, Tom Mullen will take on the London Landmarks Half Marathon – raising money and awareness
Rare Disease Day (28th Feb) social media resources
On Friday 28th February we will come together with the global Rare Disease community to mark Rare Disease Day 2025.