Informal meet up for International Awareness Day
We held an informal peer support meet up in Edinburgh on Saturday 9th November, marking the weekend closest to International
Update! Jessica’s fundraising for Jane…
A HUGE well done to Jessica Riches, her family, and friend Mary-Lou who marked the weekend closest to International CJD
Prion 2024 International Conference – Reflections from our National Coordinator
Last week saw the 2024 Prion International Conference take place in Nanchang, China. This annual conference, which is hosted in
Ian’s horse racing!
On 19th October, Ian Cogbill held a ‘virtual’ Horse Racing event in the New House Inn, North Cornelly, to raise
Jessica is raising funds in memory of Jane…
Jessica Riches is completing two days of fundraising on 9th and 10th November, as well as contributing to keeping North
Pink Day for Debbie
On Saturday 19th October, friends of Debbie and David Maginn held a ‘Pink Afternoon Tea’ for the girls and their
Article – ‘Preventing Prion Disease: An Interview with Sonia Vallabh’
“Many things are getting their legs under them right now. We will be learning how they perform clinically in the
International CJD Awareness Day – Social Media Resources
As you may be aware, the 12th November is International CJD Awareness Day. A day when members of the prion
Emma’s Cold Water Dip for Alwyn
On Saturday 14th September, armed with information sheets and t-shirts provided by the CJD Support Network, Emma Anthony and friends
Creutzfeldt–Jakob disease: From presentation to palliative care
We are pleased to share an awareness and education article recently published in the Australian Journal of General Practice. The