Final update: Liam’s Kilimanjaro Challenge!
We are excited to share a final update on Liam Stacey’s Kilimanjaro Challenge! On Friday 31st Liam completed a 6
Research News: CJD Support Network research grant applications now open! – DEADLINE EXTENDED
We are pleased to announce a new call for Research Proposals from Early Career Researchers in Prion Diseases. Thanks to
Children’s Mental Health Week 2025
This week is Children’s Mental Health Week, a time when we are reminded of the unique challenges children and young
Tom’s London Landmarks Half Marathon for Anne!
In just over two months, Tom Mullen will take on the London Landmarks Half Marathon – raising money and awareness
Rare Disease Day (28th Feb) social media resources
On Friday 28th February we will come together with the global Rare Disease community to mark Rare Disease Day 2025.
Update: Liam’s Kilimanjaro Challenge
We are thinking about Liam Stacey this week as he takes on the huge challenge of climbing Kilimanjaro for the
Charlie’s Charity Night!
A big thank you from us to Linda Barbour, who is raising funds and awareness for CJD in memory of
CJD Support Network represented at inaugural meeting of Rare, Genetic and Undiagnosed Conditions APPG
We are hugely grateful to Alice, who represented the CJD Support Network at the inaugural meeting for the All Part
Research news: Ionis community update statement
We are please to share the following community update statement that has been released by Ionis Pharmaceuticals about their clinical
Cog’s Big Christmas Quiz!
A massive thank you from us to to Ian Cogbill, along with his family, friends, members of the local community